Where’s the Instruction Manual?

Where’s the Instruction Manual?

When it comes to health issues, we’ve found there is no instruction manual.  My uncle has cerebral palsy, and unfortunately, there is no guidebook for dealing with it – from hospital visits to programs available.  You have to sort of navigate your way through muddy waters.

Or when Gram fell and had traumatic brain injury, there are no steps to take.  You just have to figure it out.

The same goes with Alzheimer’s. There is quite a bit more literature out there about caring for those with Alzheimer’s. Like this book. You gotta love “Your easy to use guide.”  NOT.

caring_ad_nia_cover

Well, sorry y’all.  Mom and I have read and read.  We have tried to educate ourselves.  We’ve met with the Alzheimer’s Association. Nothing out there has really told us the ugly truth about what will happen and how to deal.  How to deal when dad thinks mom is his housekper – and he gets mad because he doesn’t think he can pay her. Or when he gets mad at mom and wants to call the cops on her.  How do you deal with that?

Or how do you navigate getting legal guardianship?  Or how do you tell your dad/husband you’re looking at care units to put him in?  How do you help your mom take care of your dad?  How do we do this?

We are currently doing it very confused-ly, but covered in prayer.  We do have a great support system, and for that I’m thankful.  But it doesn’t take the sting out of this horrible disease.  And it doesn’t take the confusion about what your next step is.

All that to say, we would covet your prayers.  We are in a difficult time and place.


Comments

  1. I can’t even imagine how difficult this is for all of you. I will set a daily reminder to pray for you all.

  2. You guys are definitely in my prayers. I hate that you have to go through this. Thanks for sharing, I love you.

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